For being only five years old Sienna Vratimos is one of the coolest kids in the Haus Of JR family. She has accumulated thousands of followers on Instagram that are influenced by her fashion, California lifestyle, and has served as an inspiration for many families. Sienna who has non-verbal autism, has never let her special needs define her. Together Sienna and her mom Karyn run the account @karynsphotobooth which has allowed the two to express their courageous journey to the world.
We at Haus Of JR have been big fans of Sienna since discovering her on Instagram over a year ago. In 2016 she won our contest for one of the coolest looks of the year, since then we've been following her as fans. Our relationship with Sienna has been completely organic, as she was a big fan of Haus Of JR before she won the contest! Last year her mom described her relationship with our pieces as "each of your pieces speak for themselves and let her express who she is on the inside as one of the coolest kids around." For our Spring 2018 Dream Big campaign, we invited Sienna to be a part of our shoot. Her story, fashion sense, personality, and her spark embody everything that we envisioned for the Dream Big Campaign. Since meeting her we've been inspired to give back and help advocate for Autism. To celebrate our first cool kid shoutout being Sienna we're donating to the local Orange County organization TACA (Talk About Curing Autism). We encourage our followers, readers, and influencers to the same.
TACA defines Autism as a devastating neurological and biological disorder that typically presents in children between the ages of 18 months to five years of age. When Sienna was four she was diagnosed with non-verbal Autism which when described by her mother Karyn "was able to take her out of a gray area." Since birth, Sienna had suffered from developmental issues and chronic lung disease, but her diagnosis of Autism was able to explain a lot of issues she was having. At first scared, Sienna and her parents have been able to use the label of Autism in a powerful way by taking the label back.
As a five-year-old Sienna is a beautiful girl that wants to be loved and seen beyond her autism. She is a fighter, and her diagnosis is just another obstacle that she'll move over. By sharing her story on Instagram Sienna has been able to share her special spark, a tinge of magic that is unexplainable. The community she's been able to create through social media has taken to her, they're rooting for her, and so are we!
For Sienna, fashion is her way of expressing herself without having to use words. If she's feeling good about the clothes that she's wearing it gives her the ability to talk and speak to the people around her. Her style isn't limited and she can go from being a tomboy to wearing gowns on any given day. Her style is very much influenced by the Kardashian-West fashion icons. Her go-to shoes are Yeezy's, something that Sienna and her father have in common.
Fashion and Instagram have also been important in helping Sienna develop other skills. She gets to help choose her outfits and it's great for helping her learn the little things like buttoning shirts and putting outfits together. For a family with special needs, every little step that Sienna makes is huge and celebrated. Karyn, her mom, is also happy that their account has been important in creating a system of support around the autism and special needs community. It's important for them to share the good days, but also the bad days. By sharing these experiences it has allowed more people to open up their eyes to the unknown and eliminating the negative outlooks on autism. It has also been important in facilitating against the notion that every child with autism is the same - Sienna is a beautiful girl that wants to be loved and seen beyond her diagnosis. At the end of the day, she's a stylish little girl that loves doing photos, meeting people, and making new friends.
As we wrap up this profile on Sienna, we wanted to share what Karyn envisions for Sienna's take on Dream Big. "The sky is the limit for her. Sienna has the world ahead of her, but she can be whoever she wants to be, and I don't ever want her to forget that. As she gets older there will be more ups and downs, but she can do whatever she want's to do."
Talk About Curing Autism (TACA)
TACA’s mission is to educate, empower and support families affected by autism, and to help families speed up the cycle time from the autism diagnosis to effective treatments.
- Local chapters for learning, encouragement and support for families
- Parent education events, programs and publications
- A variety of individual support programs ranging from mentoring to scholarships to Spanish language outreach and more
TACA is a 501(c)(3) tax exempt organization
TACA is a Silver Guidestar participant
TACA is recognized as a Top Rated Nonprofit by GreatNonprofits